Meaning of the experience of spirituality at the end of life
by Dose, Ann Marie, Ph.D., UNIVERSITY OF MINNESOTA, 2007, 146 pages; 3292943

Abstract:

Background. One of life's most vulnerable phases is that experienced at the end of life, with potential for despair and hopelessness. An important strategy to cope with this phase may be to incorporate, maintain or deepen spirituality in one's life. Spirituality remains an elusive concept to define and overlaps with the concept of religion but it may be one of the most important components of end of life care. The long-range goal of this research is to improve overall quality of life and quality of care for individuals at the end of life. Purpose. The study purpose was to describe the meaning of the experience of spirituality at the end of life as experienced by those receiving hospice care, informed and shaped by their remembered experiences of spirituality throughout their lifetimes. Design/Methods. This phenomenological study followed van Manen's (1997) framework. Participants were asked to complete written lifelines of their remembered spiritual journeys throughout their lifetimes at study entry as a reflective aid for subsequent audiotaped unstructured interviews, where they discussed their lifelines and described to the researcher their current experiences of spirituality. Interview transcripts were coded and themes identified to interpret the essence of the lived experience of spirituality at the end of life. Findings. Eleven Midwest hospice patients (4 males, 7 females) participated in this study. The meaning of the lived experience of spirituality at the end of life was framed within the spirituality lived throughout one's life, with the major themes being Connectedness, Spiritual Life Moments, Pick up the Pieces and Move On, and Religion "Matters." Conclusions. Use of a structured life review was found to be helpful in reflecting on the experience of spirituality at the end of life. Identified themes seemed to describe the lived experience of spirituality for this group of elderly hospice patients. Clinicians need to remain vigilant to spiritual issues at the end of life and researchers need to continue research on end of life spirituality.

 
Advisor
SchoolUNIVERSITY OF MINNESOTA
SourceDAI/B 68-12, p. , Mar 2008
Source TypeDissertation
SubjectsNursing
Publication Number3292943
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